Monday, October 17, 2022 from 9:00 AM to 10:30 AM PDT at Continental Ballroom 6
Available for 1.50 hours of CPE credit
Activity Number: 0217-0000-22-169-L01-P
Activity Type: A Knowledge-Based Activity
This session will have 3 speakers who will present an overview for the management of rare diseases and the role of the pharmacist has in the care of this population. The first presentation will be an over of rare disease state definitions and classification. This session will serve as a primer for clinicians that are unfamiliar with rare diseases and how drugs are developed to manage these conditions. The session will highlight resources that are available to both patients and clinicians. The second presentation will describe the role the pharmacist has in the provision of care for this population. This program will describe strategies or techniques used by pharmacists specializing within specific rare diseases that can be used by all pharmacists. The third presentation will discuss the care transitions that are unique to this population including medication access, Risk Evaluation and Mitigation Strategy programs, specialty pharmacy, and inpatient/outpatient management.
 | Moderator: Zach R. Smith, Pharm.D., FCCP, BCCCP, BCPS
Clinical Pharmacy Specialist, Critical Care;
PGY2 Critical Care Program Director
Henry Ford Hospital
Detroit, Michigan
View Biography |
Learning Objectives
1. Describe the criteria used to define a rare disease.
2. Summarize the unique elements in drug development for rare diseases.
3. Explain the challenges of patient recruitment to study rare diseases.
4. Describe the role of the pharmacist in the care of patients with rare diseases.
5. Summarize strategies to optimize drug therapy outcomes in rare diseases.
6. Identify solutions for obstacles encountered while caring for a patient with a rare disease.
7. Describe barriers to medication access in patients with a rare disease.
8. Develop a treatment approach to provide care for a patient with a rare disease throughout the care continuum.
9. Identify resources to facilitate patient access to high-cost specialty pharmacy medications.